Reorientation

6/7/18

It is daunting to be reorienting on so many levels at once. In this new environment I can see how much more physically compromised I have become. My MS symptoms have increased in terms of losing my lumbar, sacral, and gluteal muscles or my ‘truncal ‘muscles as my new neurologist called them today. I can hardly stand or sit or walk very far anymore, even short distances. Kendal at Oberlin is a sprawling complex with long hallways to access the range of dining rooms, activity rooms, and adjacent buildings. There are places I could never reach with my walker alone.

I am going to be fitted for either a scooter or electric wheelchair soon, and in the interim, the PT staff has loaned me someone’s old power wheelchair. It moves very slowly, which is fine as I am learning to be a good driver, slaloming around others moving at their own glacial paces. I have named it Turtle, of course, (in honor of the turtle and her friend the cement frog that I brought with me from Woodstock. The two ‘aquanauts’ stand just outside my bay window among some lilies) and I am very grateful for my slow aide de camp. Adapting to the major changes in my body in an entirely new landscape while orienting emotionally and psychologically is fatiguing.

There are many intelligent fascinating people all around me. My nearest neighbor becoming-my-friend is a woman 88 years old who lost her husband of 68 years just last year. She is nearly blind from glaucoma but has readers both mechanical and human to take in the NY Times and other interesting stories and articles that come her way. Her breakfast companions have been her friends for many years and they often have a lively political morning discussion that I eavesdrop on because they are so smart and incisive in their observations of the daily news.

Because I am chronologically younger than most in this senior facility, and appear young looking for being in my mid 60’s anyway, someone asked me if I was here touring Kendal with my mother. I replied, “No, I am the mother.” The topic of my older daughter always elicits a conversation because she is a professor at Oberlin and the reason that I am living here of all the places in the world from which to choose. There are many graduates of Oberlin at Kendal, and all are interested with how Oberlin has evolved. There are also retired ‘Obie’ professors and so far everyone I met got their degrees from top schools and are proud alumni of wherever that may be. They are an accomplished group of multi-talented innovators, educators, researchers, activists and artists.

I am lonely for intimate companionship. Richard and I would have had a lot to share with so much new life to investigate and integrate. But he is not here. Nor would we both be here if he was still on the planet. I endeavor to convert the intense longing I feel for Richard into the longing I feel for being with my newly gathering interior silence, my spiritual heart. There are moments when I don’t feel that I am longing for something missing out there. Rather I feel the silent awareness is longing for me to fall into the vast quiet, to lay back upon it, and to simply be still. Interacting with my old friends on Face Time is a huge help in twanging my tuning fork, resetting my true pitch.

Today I had a cranial-sacral massage in the PT pool down the hall from my room. With a U-shaped water cushion under my neck and a foam noodle under my legs, I float easily. The woman giving me the massage is very good. She gently finds her way to where I need the most work leading me into further release. I am not sleeping, but drifting inwards and down, down into her hands, down into the buoyant warm water, down before I was a mammal or amphibian or even a one-celled creature. There I am held and am not holding. Or am I the one holding and aware of she-who-is held? All boundaries are fluid, and the afternoon sun shines through the windows making shadowy undulations on the high ceiling above my head.

Screen Savior

I left my old life completely behind while my daughter and son-in-law drove me to my new home in Ohio. I have been here at Kendal, the senior facility at Oberlin college for a day and a half. It is too new to talk about except to say I believe it will be fine and more than fine. Right now I am still stunned and exhausted from the journey and meeting newness at every moment.

I will just leave a poem to mark traversing the Northeast to the Midwest by car.

5/28/18

Screen Savior

Lying with my head on my mother’s lap

across the bench seat in our ’52 Chevy

tree tops and telephone wires

rush by

sweet smells of summer tucking me in

 

Today I left my hometown

semi reclining in the back seat of a Subaru

this long drive from Woodstock

upstate NY mountain greens and RVs rush by

 

Sitting up I see

Memorial Day golfers, hikers, kayakers,

trucks, motorcycles, American flags

morning beers and tents in the Oxbow campsite

orange life vests swimming in the Allegheny

 

Clouds pull away like taffy

into mashed potatoes and cotton balls

milky mares tails

of a hot summer day

 

My old home leaves me in miles and hours

the screen I am using hasn’t changed

only the projections on it from

childhood to widowhood

 

Always north and west

the same eyes see

Damascus, Bath, Cuba go by

the Seneca-Iroquois Nation museum and casino

Jamestown, into Eerie, PA

 

Rolling on to the flat lands of OH

through a haze of barbecue smoke

the Great Lake glimmers at Cleveland’s edge

we drive on through to Oberlin

my new home town

 

In the hotel at night I close my eyes

the world still rushing by

the screen never alters

it must be untouched Love itself

the only home that remains still

For a New Beginning

I am leaving the state of New York four days from now after living here almost all of my sixty six years. My belongings are reduced to what is essential. There have been many Last Times for seeing friends. Now I am focused more towards my First Times. Crossing over into Ohio, seeing Cleveland where my daughter and son-in-law live, staying overnight in the town of Oberlin, then entering into my new potentially forever home in Kendal, a senior living facility: these will be entirely new encounters.

Today I am less focused on departure and more on arrival. I am atop the highest mast looking to shout land ho! after so many days of being at sea. It was an unexpected voyage to begin with. My husband’s diagnosis of cancer in October of 2016, ending with his death in February, 2018, has been dangerous, exhilarating, tragic and magical. These experiences ravaged the illusion that I was ever entirely the captain of my own vessel. It is both humbling and a relief to be divested of false control. I now am more able to entrust the wheel and rudders to Other hands, and appreciate the role of being a sadder but wiser passenger.

I know the stars guiding me to my next destination are shining clear and true. I know a lot more of how to continue navigating with a broken heart. I know a lot more about how to ask for help and to appreciate how much love and kindness there is in our outwardly hostile world. I better understand how disillusionment, loss, and grief can lead to rebuilding a sturdy faith. I continue to experience the depth of the ocean floor lying peacefully below. It is an ever present part of the shifting seas that seems to toss us about without regard to our desires, hopes, and dreams. I am captain/not captain and I welcome you aboard my battered vessel as soon as I dock in Ohio. It is time to put new sailing skills to use and I am pleased to report I have no idea of what that will look like. Other hands For a New Beginning.

 

My friend Sage sent me this poem last week.

For a New Beginning

In out-of-the-way places of the heart,
Where your thoughts never think to wander,
This beginning has been quietly forming,
Waiting until you were ready to emerge.
For a long time it has watched your desire,
Feeling the emptiness grow inside you,
Noticing how you willed yourself on,
Still unable to leave what you had outgrown.
It watched you play with the seduction of safety
And the grey promises that sameness whispered,
Heard the waves of turmoil rise and relent,
Wondered would you always live like this.
Then the delight, when your courage kindled,
And out you stepped onto new ground,
Your eyes young again with energy and dream,
A path of plenitude opening before you.
Though your destination is not clear
You can trust the promise of this opening;
Unfurl yourself into the grace of beginning
That is one with your life’s desire.
Awaken your spirit to adventure;
Hold nothing back, learn to find ease in risk;
Soon you will be home in a new rhythm,
For your soul senses the world that awaits you.

John O’Donohue

The News

Diary 5/18/18

Another day, another school shooting. I can hardly stand it. It is unconscionable that nothing changes the meter on American fear and violence. There is not even an attempt to make a difference about guns of any kind on the part of those who could speak truth and not just some blind adherence to their own power. Money and power. Thus it has always been. “The poor will always be with us.” Therefore the wealthy and powerful will always defend their positions to make sure nothing changes.

From my perspective, the illusion of control is pervasive and based on a deeper truth. That truth is that as long as we are identified with our little separate selves we are desperate to fill the void with whatever we can grab and hold on to. The gap between what religion calls God and those struggling small selves grows ever wider. So does the gap between rich and poor, educated and uneducated, and the self-identified Us and Them. The more limited we become in our identities, the more race, skin color, religion or simply any degree of otherness, becomes the target of raging discontent. Helpless to avert the acute pain of being human, we need to vent our blame and hostility out there- anywhere outside of ourselves to take away the burden of the unbearable. The real unbearable pain is the loss of our inter-connectedness in the heart (of the God of your choice). Once disconnected enough, we lose the capacity to distinguish our common humanity.

I weep a little, I pray for the passage of all the souls torn from their bodies, for all who are bereft as a result of this tragedy today. And I am angry and frustrated and hope to find ways as a citizen to use my voice effectively. I look to find my own hurt and retaliatory violence since that is the only thing I can attend to today. I try to see my own ignorant rages, fears, and hatreds before I hurl these shooters out of my heart.

 

I wrote the following poem over twenty years ago. I replaced ‘newspaper’ with ‘computer screen.’

The News

This computer screen separates us.

You never placed the gun in my hand

But I have killed a thousand nameless faces.

I never saw you on the battlefield

but I am at war.

Silently, I grind the faces of my enemies

beneath my boot heels every day.

I have drunk the victim’s bitter gall with you.

One day we shall be justified

in a terrible revenge.

 

This morning I sit at my warm kitchen table.

reading about you.

If news itself connected us to one another

perhaps

we could begin to hold forgiveness in our hearts

instead of these guns in our hands.

 

This next poem speaks to how I treat ideas from someone I love when I don’t agree with them.

NRA Membership 2/7/00

Unbridled enthusiasm runs amok in the fields.

Your thoughts are clay pigeons

And I want to shoot them down

Before they sprout wings and fly away.

Pessimism takes so much energy, you said.

But I believe I spend less on disappointment, I replied.

 

I’d rather resign my membership in the NRA

And stand there

With my hands in my pockets

Open

Not invested in the outcome.

Departure into the Unknown

Diary 5/15/18

Departure into the Unknown

5/11

Woke up with a clench of fear in the gut that dissipated as soon as I opened my eyes enough to be present. No husband, no identity, no ideas. It was an animal moment of disorientation. A momentary loss of ground. A total loss of any ground and then it passed; I am here for right now and here is where I will be until I am packed and driven away. I am safe. I am sad. I am un-tethering. I am happy to have a benign future to anticipate. I am speechless. I am a fount of the unknown.

5/15/18

My friend Cathie, who is soon also moving to the mid-west, asked me how I am. I said “confused, fearful, certain, doubtful, curious, sad, and excited.” That is taken with a strong pinch of love. That pinch sustains me for my last week and a half of living in upstate New York. Boxes stand everywhere, along with bags, and large rubber bins; some are labeled and sealed, and some still an open question. I am leaving here no matter how complete or unfinished I feel. The material objects packed into our car will be obvious, few, and necessary. The rest of my old home life will be stored for whatever purpose my daughter Emilia and son-in-law Zoran might want for their new home.

I have often used the metaphor of aerialists to point out that there is a moment when you must let go of one trapeze in order to trust your forward momentum to grab on to the next one swinging your way. You feel a weightless gap in the middle of every change. Thrilling, terrifying, and tremendously fulfilling when you don’t end up bouncing down into the net or further into the sawdust and regret below. If you do fall, you have to climb back up the ladder and strengthen your skills to try swinging out harder to reach the next bar or fellow aerialist coming along.

Departure includes making order out of chaos, retaining just enough of the old skeleton to resurrect a new life. I have had the luxury of time to strip down to a usable skeleton. I require little padding and have no idea of how to imagine what the new body will look like. It is an open experience for me and I think, in the long run, it is easier this way- to discover a context for daily living without so many preconceptions to prejudice me towards my future. I am moving into the unknown environment of Kendal, a senior living facility in Oberlin, OH. I am aiming for them to catch me at the other end of my swing to the west.

Fount of the Unknown Waters

5/15/18

Spewing out my known losses

makes room

for unknown aquifers

artesian wells spring forth

with every step

saints and god/desses do that

leave footprints of faith

well marked oases on desert sands

Thirsty

I try to follow

while clutching the world I knew

puddles shrink into sand

until there is nothing to grasp

Unlooked for

unknown waters arise

gushing forth

fountains everywhere nowhere

sprayed exuberantly from earth to air

dissipating mists of time and memory

unpredictable eruptions of pure faith

drench the weary traveler through and through

Breaking Vessels: Four Gifts of Many

Broken Vessels: Four Gifts of Many

My cervical (neck) vertebrae are slowly being crushed by increasing stenosis. As result, I am experiencing bilateral nerve impingement in both hands.With a clumsy finger, which happens more often than not, I lost everything I wrote today, as well as my entry to online banking since I managed to mess it up by trying four times. I find keyboard computing more and more frustrating. I know I can use my voice to dictate what I write if my hands continue to disobey me, but that would be a big learning curve which I would rather not attempt right now.

Though I erased the words of my early morning thoughts, I do remember that I was addressing how I am dealing with so many losses at all at once. As I have written before, gratitude and grief are wound round a staff like snakes on a Caduceus. I never knew this before my husband died and I wouldn’t have believed you if tried to convince me 18 months ago. From a spiritual point of view, I could have mentally comprehended this theory. To discover the insignia’s truth by living through the worst pain I have ever endured, was the only way to integrate the radical nature of healing from such a loss.

Losing Richard meant losing my entire way of life, and all of the identities I acquired over our almost 50 years together. I flowered into a sixty six year old woman from the bud of a teenage girl within the sweet bond of our long intimate relationship. That vessel is broken never to be mended. We lived very full lives together as dancers, musicians, actors, spiritual seekers, parents, psychotherapists, and homesteaders.

My body long ago began withdrawing into the reality of secondary progressive MS. Many of those sub-indentities (mother, gardener, chef, cheese maker, teacher, active interfaith minister, etc.) were already fading. This contributed to the shock of Richard being the one to die first from an aggressive form of lymphoma. He was the vigorous one who held his counseling practice in one hand and his sheep and horses in the other. I was the one who was disappearing.

Gift number one (and this from someone who desperately cringed at the phrase “the gift of cancer” for both patient and caregiver) was that I was summoned out into the world again. In spite of my bodily pain and exhaustion, I had to be the one to supervise moving everything out of the house to sell it. The point person through Richard’s increasingly miserable chemo-therapies also had to be me. Though we hired wonderful help along the way, and our many friends and family members pitched in to navigate the dark waters, (we would have drowned without them) I was his primary anchor as he faced his death. My bottled genie was released and though I am even more compromised than before, I wouldn’t be able to crawl back inside even if I wanted to. Which I don’t.

Gift number two is knowing that the amount of emotional pain I experience is directly proportional to the amount of love we shared.

Gift number three is that once I allow myself to let my heart/guts rip open in howlingkeeningshrilling grief, I am cleansed and left open in a vast emptiness of unbounded silence. Paradoxically, I become a whole vessel embodying more peace and contentment than I have ever felt in my life before. This space requires no effort or striving. It just is, and seems to underlie Everything. If it is great loss that brings me there, I now welcome it.

Gift number four is witnessing the loving kindness from near and far that has poured my way. Family friends, and strangers showed up at my door for days and weeks and months with all manner of support from the practical to the ethereal in those last holy days of his dying. I see for myself that Love endures despite the worldly backdrop of our colossal human ignorance.

Without grief at this depth, there would be no equally profound gratitude for living without my beloved. I know without a doubt that everything I love, I will lose. This includes my own life which I am passionately relearning to love. As I surrender to my broken vessel, gifts appear.

Rock, Water, and Love

First blog

Since I concluded my journal on the Caring Bridge website, I find that I am still writing every day. Tracking Richard’s last days and my subsequent journey into widowhood continues to be a sorrowfully glorious opportunity for revelation. More poems, more heart expansion as I let go of my former life, more lessons of grief and gratitude emerge as the waters ebb and flow around me. I wrote this today:

Diary 5/1/18

I am once more amazed at how time has shifted in my calculations. Kronos and Kairos time keep dancing in confusing configurations. (Kronos is the original Greek god of chronological linear time as noted by clocks and calendars, while Kairos, his grandson, is all about seizing the moment.) I am sure there will always remain a ‘before Richard died and after Richard died ‘ set point for many varied reasons as I continue to greet his death. Including my evolving emotional reactions, I also have simultaneously experienced so many changes of identity. I am now a widow without my own home. I am no longer going to be Woodstocker as I have been since my early childhood. I will be moving into a (wonderful) senior care facility in Ohio.

All of this was literally unimaginable to me two years ago. I must forgive myself the difficulty I have in grasping that it is more than two weeks since Richard’s memorial which was exactly two months from the day he died. Which was 16 months before he was diagnosed and the whole ordeal of treating his primary Central Nervous System Lymphoma began.

My past is unraveling gracefully. I may be the luckiest widow in the world. I will be taken care of financially even as my health deteriorates. My daughters are helpful loving, strong women who support me at every step. I have wonderful friends who love me and show it in practical hands-on ways. They hear my tears and fears and know I must move away. Even though we face the reality that cyberspace is a very poor cousin compared to sharing a cup of tea in person, it is right for me to leave here.

All of this movement is occurring around the huge boulder of loss that has rolled into my stream bed. The boulder is immovable. Life never stands still. I find myself thirsty for life, in awe of the hard surface of mortality. I finally am more cognizant that I can’t have my thirst quenched without also imbibing death. “Rock loves stillness, Water loves movement, Love loves loving. Perfect. Breathless. Ineffable.” I no longer remember why I wrote those words over twelve years ago. Three years later I asked Richard to record them for an album I created for my senior thesis in Interfaith Ministry. We played his voice reciting those words at the memorial. They speak on an even deeper level of truth to me now.

It is no metaphor that Richard’s ashes flow in the stream beside this rental house.They are carried by spring rains to the sea, washing exuberantly around all boulders in their path. A pinch of his ashes also lie beneath Cliff and Sara’s backyard redwood tree in California. And with his bother’s chosen places in GA and CO. Another pinch will come with me and Emilia to Ohio and a few more will fly with Emilia to India when her work calls her back. I know he is everywhere and nowhere. And I know that he is with the stillness of Presence.