September

cloud puzzle by author

On Turning Seventy-four

Clouds assemble and pull apart,

puzzle pieces against a sharp blue sky.

Clattering leaves shed yellow ones,

introducing this year’s Leaf Ballet.

September weather in August.

Cicadas and crickets are slowing down.

Only yesterday they strummed the air.

September babies like me relish

dew drenched mornings, jackets in the shade,

afternoon sunny spots breaking through.

This will be a good year to stretch my heart

wider and wider with sadder and sadder news.

Love, I believe, has no beginning and no end,

despite human appearances to the contrary.

The fall weather in NE Ohio began a couple of weeks ago, much to my delight. It is a treasure of deep blue sky (a poet friend wrote of “Dresden blue”) with interwoven sun and shade as the clouds drift and stretch like we do at the end of summer. I do not pay much attention to my birthdays as they inevitably pile up but it is a time to see visiting relatives which is a treat I look forward to.

The state of country and world affairs seem to keep pushing us towards a crisis, and as my chiropractor suggested today, perhaps it could be “a small catastrophe”. May it be enough to make real changes, yet not enough to totally derail human infrastructures. It will not be easy to weather nor to repair, whatever forms it will take.

Our personal dramas unfold against the polarizing tensions and the world keeps turning and our lives go on. My five and a half-year-old grandson started pubic school kindergarten and so far, he loves it. His younger brother continues on in his local small Montessori school and so they are getting in on the best ground floor of education that their community has to offer, even as the future of education is under reconstruction from AI to our national governmental deconstruction. The boys are a source of joy with which I am blessed.

I wrote this poem after my Dutch friend, Johan Kos died. He was a principal dancer in our small dance company in the 1970’s and I will never forget the duet that he and my husband choreographed for themselves. To see very strong men move together with grace and power stays with me today.

Misericordia is from the Latin “misericors,” meaning “merciful,” –“misereri” (to pity) and “cor” (heart)- the act of extending one’s heart to another’s suffering.” 

Misericordia

The planet turns.

The sun appears to rise.

Branches bowed with rain touch the ground.

The day lies down before me.

Birds shimmer the dawn.

Yesterday, my friend of 50 years suddenly died.

Last night, more bombs were dropped and, I cried.

What losses we inflict. What pain we suffer.

The cat rolls over, asking for love.

The day is belly up and my fingers touch innocence and peace.

May we have mercy this day, mercy.

February

I have two pieces I’d like to share this month. One is a poem from today. I usually start out with an impulse, idea, or phrase that moves me to start writing a poem. I never know where it is heading until I come to what feels like an end. Sometimes I lose my way and sometimes I feel the ending isn’t right but I want to keep the beginning and see what happens if I shift a word or phrase until I realize I was headed somewhere in an entirely different direction. I learn what it is I really wanted to say. I have written a number of poems and phrases regarding our current political reality but this one started out with what is happening right outside my window. The sobering world entered in anyway.

February 1 2025

After weeks of a deep freeze

it is raining outside.

Brownish green grass reappears

beneath vanishing snow-

color TV after
so many black and white reruns.

We know it will snow again.

Outside my window

birds will flock back to their feeder,

the chipmunk will curl up under a new white blanket.

But for today we are reminded

seasons of the world keep changing, even

this darkening season of blighted

compassion, reason, and viable hope.

Some roots below will die and some will live on

insisting on life that waits

for the planet to rotate and tilt

towards and away from

our blazing star that dictates

how much light we harness

to grow and support

all that lives on this earth.

For the second piece, I was asked to contribute something for a Valentine’s Day program for our Kendal community. Again I had no idea of what I wanted to share as it is Richard’s (my husband’s) death day anniversary. What came was a complete surprise to me and it feels right, just as it is.

AND NOW FOR SOMETHING COMPLETELY DIFFERENT…

A Very Short History: From a Sexy Nude Dude with Washboard Abs to Naked Baby Angel Bottoms on Valentines Day.

The ancient Greeks started this god of love business. Their multiple gods and goddesses often enacted the worst of human traits demonstrating infanticidal rage, greed, jealousy, and yes, lust. Eros was a hunky, adult male deifying desire. It is not surprising that his parentage is a bit murky. He could have been the result of several different notable couplings. Eros was a very powerful figure and his ability to manifest whatever he wanted to happen, could be disastrous. He was both handsome and seductively dangerous.

Gradually, Eros physically evolved into a chubby youthful figure. Richard Martin, a professor at Stanford says, “If a woman controlled his every move {in this case his mother Aphrodite}, then mortals would have no reason to fear him. Eros was suddenly not so powerful anymore: He would act only on his mother’s wishes.”

In any event, when the Romans took on the Greek pantheon as their own, Eros slowly morphed into Cupid, an even chubbier youngster portrayed with wings and a bow and arrows. Roman Latin used the word ‘cupido’ to mean passion or desire. This god Cupid could only follow his mother’s wishes to make people fall in love. The word cupido may have been based on an ancient Sumerian word for love. Passionate love has always been recognized as a powerful human force.

Christians had several martyred monks named Valentine, and so, we celebrate Valentine’s Day on their feast day. Perhaps this day was superimposed on an early pagan celebration called Imbolc, honoring the ancient Celtic Goddess, Brigid. Originally held in early February, this day represented spring renewal, growth, and fertility, which went beyond the idea of romantic love. The celebration was devoted to the propagation of sustaining Life itself. And yes, blessed babies were born from this happy celebration.

By the 15th century, Western artists began to fixate on the idea of chubby little winged cherubs that dwelled amongst the host of Christian angels. Why anyone thought that endowing mischievous boy toddlers with wings and weapons was a good idea, I cannot imagine. My grandsons, having left the baby stage at the advanced ages of 3 and 5 do not inspire confidence as to having reliable angelic powers except for wringing pure love out of me when they are sound asleep. Then they are Hallmark card models, and you could skip the flowers and go straight for chocolates. 

History aside, this is the day on which we have agreed to celebrate love. This is a bittersweet day for me because my husband died on February 14th, 2018. But, please note that my husband had a terrific sense of humor. I invite you to sing with me the chorus of a song I wrote some 40 years ago, the first verse of which was about him. The chorus is a short and sweet nod to love itself.

The words are:

Love, what a short word

 Love, what a long 

Love, what a strong word

Love, love, sweet love.

February

February

Around mid-January I found myself turning teary while listening to the sad news or the occasional good news story on the radio, hearing just about any music, or seeing my dear elderly companions as they each navigate their days. I was teary when a retired nurse from my assisted living area recently returned for a day to fill an open space on the schedule. She is a very formal efficient sort of woman, and when I greeted her as I rolled past the nurse’s station in my wheelchair, she stepped out from behind her desk and came around to give me a hug. My friends and I were astonished at this display of affection. It touched me deeply and I saved shedding the tears sparkling in my eyes for when I returned to my room. I teared again up today when the sun shone bright after weeks of dreary cold weather. It was fifty degrees F on the first of February, and I went outside on my mobility scooter to enjoy the fresh air for the first time in a month. The above photo of melting ice on the pond is from that excursion. Joy undid me. It doesn’t take much. I, too, am melting.

I am not feeling sad, just very vulnerable. I know this emotional upwelling is because we are approaching Valentine’s Day, marking the sixth anniversary of my husband death. I try to remain available to whatever arises in me to mark this occasion. My daughters and I usually score some chocolate chip ice cream to honor his memory, just as we did when we served ice cream to the hundreds who attended his memorial. Grief is an unpredictable ongoing phenomenon. So far, this year is offering me a delightful mixture of nostalgia, memories, gratitude, and joy. I have written before about how grief is tied to gratitude. My heart was cracked wide open when Richard was dying. It appears that it has never again closed as tightly as before. This is what the touchstone of this anniversary is revealing to me. Losing him was his gift to me of a still opening heart.

Of course I miss him, and the intimacy of a partner who knew every fault I have and loved me anyway- the jokes we invented together when we were teenagers falling deeply in love- or co-parenting two cherished daughters- and the knowledge of how he would have adored his two grandsons had he lived to meet them. I embrace missing that Richard, the man who was my husband for almost fifty years. I also know how happy he would be that I live in a wonderful new home where I am supported at all levels of my being to thrive and live the last chapter of my life without his physical presence. His devoted life work provided me with the opportunity to live at Kendal at Oberlin and I am grateful for that alone every day.

May Valentine’s Day be not just a commercial reminder to buy cards, flowers, and chocolates, (there’s nothing wrong with any of those!) to show our love for others but also to serve as a deeper touchstone for sharing our love and light every day with all beings in our lives.

I have likely posted this song some years ago? but I post it here again with my voice of loving remembrance.

My February Song                   1/22/20                    by Judi Bachrach

February is the month you had to leave me

My heart is held within the hand of memories

March lions chase the cold

New lambs cry in the fold

Every year, Every year,

Every year creates new seasons for my life.





April drenches me with pouring rain and sun

May flowers born of hope rise up in everyone

June, July and August

Summer blesses each of us

Every year, Every Year,

Every year creates new seasons for my life.





September burns to colors of the molting Earth

October catches leaves for her great rebirth

November calls me home,

giving thanks for everyone

Every year, Every year,

Every year creates new seasons for my life.





December takes me into the darkest night

January starts a new year in returning light

February comes again,

with a day for love and then

Every year, Every Year,

Every Year creates new seasons for my life.

With Help From Family and Friends

Help From my Family and Friends

The first week of October here in northeast Ohio was in the 80’s. Summer weather! Though we had had a number of chilly September nights that rendered nighttime insects silent, the creatures surged back with enthusiastic trilling. Since yesterday, the thermometer and insect sounds slid back down again. There is a stiff breeze accompanying the cold front. Sweaters, corduroys, and snuggly jackets sprouted like mushrooms overnight. I had help to accomplish the annual Changing of the Clothes and my bureau is full because of bulkier materials. My closet is half empty with the hung blouses, skirts, and dresses tucked away in a storge bin under my plant shelf. Who knows what this year’s transition to winter will be like? Warmer than usual? Colder? More or less snow? What exactly is usual anyway? Not like what I remember when I was a child? Answer: wait and see.

The world goes on as it does. Horrible events explode, others weary in duration, unexpected discoveries and under-reported miracles of beauty, love and survival shine through the cracks of our human endeavors. I never could have imagined these ongoing challenges presented to me every day- the ones where I am asked to keep my heart open to witness constant violence and the unraveling of democracies all over the planet.

I thought only to hold my beloveds as they go through the trials of their ordinary lives. To be a planetary citizen who cultivates compassion and peace is to have long ago signed a contract to live in this age at this exact juncture of history. Not the one our parents lived in. Not as we remember how life used to be when we were children. Weather, politics, education, technology, science, or history are not the same for our grandchildren as it was for us. The challenges of my generation continue to expand even as our hearts want to contract in the darker face of it all.

Focusing close to home is where we can have an immediate impact and where we can see how to heal and be healed. Here in the northern hemisphere, the old tapestry colors of fall illuminate the beautiful necessity of letting go. Chlorophyl factories are not on strike but naturally shutting down their former production. Leaves detach without any makeup or clinging and fall to the ground in an ever faster choreographed ballet. Animals fatten up and prepare for slower metabolisms, dormancy, or migration without wondering for how long or how cold it will be. They trust they will adapt. As will we. As we must and as fast or slowly as we do.

I am adapting to my new power wheelchair. Her name is Reina the Beast (a queen because she has a bit of purple metal on her fenders. She rises up so that seated, I can look a tall person in the eye. She reclines and unfolds like a hospital bed, and is designed for indoor or outdoor navigation with large middle wheels sporting thick cleats. (I haven’t yet found the control for her to pay my taxes, but I’ll keep looking.) I only use her inside for now as I do not wish to deal with the dirt her clever wheels would track into my one room home. As long as I can still transfer into my scooter which lives in the hall by my door, I will ride that into dawn and sunsets wearing my hat and fall jacket. I am losing mobility and strength, and Reina will help me maintain my independence for that much longer. Not with a “little bit of (but with a lot of) help from my friends.” Cue the Beatles…you do remember them?

November

November

Like much of the northeast, here in Ohio, November has waltzed in on unusually warm weather. I am not complaining, mind you. I enjoy the still warm caress of the sun even as most of the trees are bare, inspiring two haikus.

Starlings          11/1/22

Starlings alighted

Like black leaves on bare branches

Murmuring migrants

Cloudy

Thick clouds break apart

Blue sky and sun always there

I am looking up

And of course, as we move towards election day in the U.S., things are not necessarily looking up. During an online prayer gathering that I sat in on this morning, I felt keenly how much of a group phenomenon our intense political divide has become. We humans have such an animal need to be part of a herd. The group that most reflects fear, the need to blame, and resulting hatred and rigidity draws in millions. The group who wishes to preserve a democratic vision, an educated adherence to reality, to benign cause and effect supporting our diverse population, draws in millions. I am not exempt. Freedom to choose which herd to cling to comes with the possibility of not getting what I deem is best, even if I think we might be headed over a cliff.

Fall is always poignant as the flora and fauna respond to the waning sunlight hours in our part of the world. The cycles of physical change and the inevitable losses are apparent all around us. Loss is tangible and inescapable. On that note, I highly recommend this CD just released by Kim Rosen and Jamie Sieber. Titled, Feast of Losses, Kim embodies famous poems addressing grief and gratitude exquisitely interwoven with music created by Jamie and friends. It is an hour of deep heart opening nourishment. *

This poem came to me as I sat by one of Kendal’s many ponds.

Willow’s Way                              10/21/22                                    Judi Bachrach

Prevailing breezes from the east

collide with billowing gusts from the west

conflicting fronts halt

the slow glide of fallen leaves

across the pond

amassing by the bank

Crisp new recruits

arriving every moment

form a ragged line amid

countermanding currents

caught in the middle

quivering detachments on alert

On shore a thousand

willow thin branches

still dressed in dry green leaves

lift up hallelujah

bow down reverent whirlwind

resilient tendrils alive in sympathy

with those that fall

Trunk unmoved

anchored in the ground of being

our roots seek truth

renewed deep within

stark bare branches against the sky

* To purchase a Feast of Losses as a CD or Download, go to

https://jamisieber.com/feast-of-losses

Room 37

In reviewing some of my past posts, I have mentioned the context of our personal dramas playing out against the backdrop of the national and international stages. I will include my personal drama that began two weeks ago and is now very slowly abating. I should be a lot better in another 6 weeks or so. I’lll keep you posted….Judi Bachrach 6/22/22                          Room 37

I fell inside of my room using my rollator to cross an area rug, an act that I had accomplished safely many, many times before. I fell backwards as is my wont, always on my left haunch from years of neurological compromise on that whole side. At first, I got back up and even took the time to clean my-handmade-by-Tibetans-in-Dharmsala rug as my container of yogurt and fruit salad had spilled off my rollator and onto its’ red corner. Aghast at the mess, I successfully cleaned it up, and made a new batch of food to bring to my lunch meeting. I sat through that only feeling a little sore as is usual after a fall. Then I sat through a lovely memorial for an hour. And then the pain kicked in. Sharp acute nerve zingers that were not at all usual.

By dinnertime, I suspected I may have a fracture in my lumbar or sacral area. I knew unless I got it checked out, I would fret. Not that anything special is done about it- but I have a need to understand what is happening in my always changing body issues. I asked an IL friend if she would drive me to the local Mercy Alan hospital so I wouldn’t have to pay for an ambulance. We were shown to a private (too hot) ER room to wait. We saw a kind male nurse who took my information and said he would set up a CAT scan for me to verify any damage.

In about two hours I got the scan. It was painful maneuvering into a wheelchair and on and off the exam table and onto the CAT platform. But I did it and the scan is quick and easy and then more waiting until the radiologist read it. Finally, we heard that there was no sign of fracture and the hardware for my fused L4-5 vertebrae was alright as well. Both answers were a relief and four hours after we had arrived, we got back into the car after breathing the soft moist air of the evening. It was only a little cooler than inside the room, but the air was fresher for not being inside of the ER. A brave boy with a broken arm had cried and went home with a cast shortly before we left. Profuse thanks to my friend for hanging with me for such a long wait. And then…

The next day my body was in more pain. The pain medication they gave me at the hospital is only slightly above Ibuprofen levels and I had refused the steroids they also offered me because of a past negative experience. Usually, steroids make you feel that you are up to any challenge and can conquer the world as it benignly reduces inflammation. But I had had three days of IV steroids for an MS exacerbation years ago. I had a historic abreaction- my MS weakness had scooped me out like an empty paper bag. The steroids made me typically talkative, hungry, and red-faced, but also FURIOUS. I was an angry empty paper bag. I wouldn’t let my husband help me over a curb when we went to the high school graduation of a friend’s daughter. I turned and irrationally yelled out, “Don’t you dare touch me,” which was more than slightly embarrassing as we were both known as psychotherapists in this crowd. Oh well. So, I was reluctant to take the steroids again. Even though we produce our own natural steroids, taking it in a concentrated dosage directly reduces inflammation and can be used in conjunction with antibiotics and other drugs very effectively.

The reputation of the local hospital is that it is not that of a tightly run ship. In the morning, as I

was in more pain than the day before, my nurses suggested I get to the hospital in Elyria for an MRI. I have had many MRI’s in my life to see if my MS had produced any new lesions. It hasn’t for many years, but my latest neurologist of course, had me lie in the loud knocking, honking chamber for a whole series from head to pelvis not long ago. This one would be specific to just my lumbar region and wouldn’t take very long at all. An ambulance took me there as I didn’t think I could handle sitting up in a car and anyway I would not want to have anyone wait with me again for another unknown length of time.

Good decision. What a busy place the Elyria ER is. I was shown into a curtained room pretty quickly and nurses, registrars, and attendants came and went for about 2 hours before a doctor appeared. She asked good questions and realized I wasn’t an easy read due to past neurological issues and operations for stenosis both in my neck and lower back. She suggested an MRI to which I said yes, and this is was why I had come. I was then rolled out of the room on the hospital cot and placed in the hallway. For six more hours.

A sea of busy people surrounded me. From doctors to nurses, attendants to janitors, everyone had a job to do rushing back and forth, socializing on the run- planning a party, describing the last patient, and then over the loudspeaker- FULL TRAUMA IN ER, repeated three times right over my head where I had been parked. Faster chatter of “Car vs. motorcycle,” and another said, “Actually it was a motorcycle that ran into a car.” Soon a man was wheeled by me and he was saying,” I was just driving along when this 15-year-old girl on a motorcycle run into me…” He was bleeding around his arms but was clearly coherent. A short calm of activity before the next storm included a question asked of one another by some attendants. “What bottom feeder in the ocean would you be?” “A shrimp, well, not a lobster…,”and more answers of obscure creatures from those that knew their oceanic bottom feeders.

Another trauma announcement. “57-year-old man, some drinking, fell on the kitchen floor and is totally unresponsive.” Ambulance drivers arrive, unload and scoot out of the way. Soon loud garbled angry ranting was heard, so I presumed the man was now very responsive. A nurse running by commenting to her friend, “The wife smelled of alcohol, too.” A son was heard to say- “They wasn’t drinking much, ‘cause I only saw two cans…”

In another curtained area a diabetic elderly father was lovingly visited by his adult children all day. “Well, dad,” the son said, “the truck was only $500.00 a month for four years but he ain’t telling it like it is. Gotta be at least 8 years. Ya know he ain’t good with numbers.” His father agreed and there were many truck comparisons discussed for quite a while until the son had to go back to work. A kiss followed by,” Love you, dad. “Love you, too, son.” An ebullient daughter arrived next. She worked elsewhere in the hospital and described in detail her father’s morning to his doctor, until the time that her dad had called her after she had left for work and said he didn’t have the energy to pick up the remote to the TV. As a loving caretaker she made sure the nurses and docs had the full picture of what he had and hadn’t done to bring on this sudden weak spell.

Later in the afternoon, (I considered him a kind of an invisible friend of mine as the hours ticked

by) I heard a doctor scold him for his sips of soda and two doughnuts that he ate yesterday. Protests and some muttering about his daughter, but my friend was good natured about it all. It was a tight knit family that supported him. I was glad for him.

My legs were so weak that I could not make it to a restroom and use it by myself. I snagged a passing nurse and asked to use a bedpan. Maybe 45 minutes later a really lovely nurse that was appropriately named Summer (it was the first day of summer) came to my rescue. Since I was right out in the hallway, where could she safely roll my wide cot without bumping into all of the other wide carts, laundry bins, ambulance cots, and wheelchairs to give me some privacy?  Aha! A plastic sheeted hallway that was under renovation.

We could hear workmen inside the translucent covering, but urgency overrode modesty. Summer was professional, discreet and a really good driver of hospital carts. I made it safely back to my wall space which further demonstrated her parallel parking skills. I was now famished having only had a small salad before I was whooshed away from Kendal at around 2:00. I mentioned to several people rushing by that I needed something, anything, as I had a hunger headache and was feeling faint which is a trick since I had been lying down the whole time. “I’ll get your nurse, I am not your nurse, not just now…”

A nurse did come by to prick my finger to see if I was diabetic. I said, no, I am just very hungry. “Just checking and see, your number is good,” she threw over her shoulder as I held the ball of cotton over my bleeding fingertip. And then another trauma patient was admitted with “brain activity” later spoken of as a stroke. I saw the woman in question wheeled by and she couldn’t answer any questions and could not squeeze a loved one’s hand. OK, a hunger headache will not be the death of me.

All of a sudden a transport woman appeared by my cot announcing, “Hi, I’m Fran. I am to take you to the MRI now.”

“Great”, I said, pushing away a fantasy of eating, well… anything by then. It was around 6:00. Fran told me that my wall space was called room 37. Good to know but it had taken her a while to find it. She actually got me into a wheelchair despite my screeches of pain and told me the MRI guys were great and if I wasn’t wearing any metal I probably wouldn’t have to put on a gown. Good again, as transferring had been painful and undressing and dressing seemed an impossible task.

Down to the bottom of the hospital where all the mysterious radiology arts are performed, Fran deposited me in the bare waiting room. One cheerful chatty man came out after he and his partner had been discussing the merits of the rock music that their current patient had chosen to listen to. They didn’t like it as much as the Hungarian folk music an earlier client had asked for. Ah, the bounty of the internet through earphones. He asked me what music I wanted and from previous MRI experiences I said I’ll just take earplugs. He earnestly suggested, “How about ocean sounds?” I said, “OK, yes, ocean sounds were fine.” He was glad I agreed.

 I used the wait for my turn to move my upper body after lying around all day. The guy’s partner

peeked around the corner and said, “Wheelchair Tai Chi. Cool.” I did not disabuse him of my coolness as drained and in pain as I was. They were both indeed nice guys.

Finally, I somehow crawled up onto the MRI bed, got a bolster under my knees, and lovely thick padded headphones. I was handed my call button and slid into an apparently brand new “Siemans Healthineer” MRI machine. It was as spacious as a tube could be and the glide in was ultra smooth. The ocean roared and gurgled in my ears and the powerful magnetic noises were as minimal as this machine could ever be. 25 minutes later I was rolled out, a star patient who did not move, and the pictures were fine. Next up the was the wait for a radiologist to read them. No idea when that would be as I have always been told after this kind of photo shoot.

A different transporter came for me and to return me to room 37.  By this time, I was determined to eat something. I had looked longingly at the snack machines as we whizzed by them when we headed up in the elevator. We arrived upstairs in the middle of the shift change. Smells of dinners were just cruel, and someone had baked a cake for the surgical residents for some occasion. “And what do you guys do when you are not on call?” Some flirting, some cake, and then the sea of talking people dispersed and it was quiet again. My time for demanding food had come. Wait, was that my very own nurse still on duty? It was!

I said loudly, “Sorry to bother you, but I have been here for a very long time and I am starving.” The nurse took pity on me. Usually a healthy vegetarian, I immediately devoured the sliced turkey on plain white bread but skipped the can of Sprite and pretzels she had brought me. That sandwich was enough to quell my pounding head. Uh Oh. I needed to use a bedpan again. I saw my nurse rushing away and I said, “Sorry, but now I have to use a bedpan.” She said, “You keep saying sorry, but I’m not feeling it.” She said it with a very slight smirk which was Ok as long as she provided me with the means to relieve myself. She found a privacy screen to surround my cot and that was enough for me, and at this point, who cared? Not me and surely not all of these official body mechanics swarming around room 37.

At about 9:00 a new doc arrived and the privacy screen was long gone. He said, “Good news, the radiologist saw no fractures and your fusion hardware is fine. We will put you on steroids and the previous script of Toradol should help with the pain. I will work on your discharge papers.” I now accepted the steroids gratefully however they may change my personality. I had to have some relief from the inflammatory pain. I had a shot of my painkiller (stronger than taking it orally) and swallowed the steroids.

½ hour later, the papers were deposited at the end of my cot. When my nurse flitted by she saw them and said. “Good, you can go home now.”

“But how? I came by ambulance.”

“Well, we will call you an Uber.”

“I said, look at me. I can’t sit up in a car.”

“Isn’t there someone you can call ‘cause waiting for an ambulance takes a long time.”

“I have a daughter who lives in Lakewood but she is exhausted from her non-sleeping baby. And I can’t get into and sit up in a car.”

Another sigh from the nurse. She came back a minute later saying, “I always feel bad for people

who have to use an ambulance. They said they might be here any time from 11:00pm until midnight.”

I blanched, but what choice did I have? In another quiet moment I looked over at the woman in the nursing station who had been manning the phones all day on her very long shift. I told her that I thought she was a whiz and a wonder to be so organized with fielding doctors, administrators and anxious relatives all day. She thanked me and another man came in and asked for some papers. She indicated they were on the table over there. He said something about that being sloppy. The woman shook her head and pointed at me. “Uh unh. According to her, I am very organized,” and gave me a wink.

Thankfully, the ambulance arrived to load me up on their gurney at 10:30. Goodbye ER room 37. I was so grateful to be on my way home. The SCC (Stephen’s Care Center) night staff welcomed me home and due to steroids, I was able to actually shuffle with my rollator to painfully but successfully to use the bathroom on my own with intense care. Wow! In the morning, still feeling the help of steroids (no anger in sight) I participated in the Olympic event of a shower and got dressed and fixed breakfast verrrrry carefully. (I only scored a 2, but hey, it was the Olympics.) Satisfied with accomplishing a few normal human activities, I went to bed. After 3 hours of lying around I got up to use the john, and…my legs collapsed and down I went, directly on the same haunch. Bad immediate pain. My call button didn’t work! I crawled onto the toilet, relieved myself somehow and pulled the call button cord on the wall above my head.

The sense of strength I had enjoyed was gone again. I now had to have two people lift me on and off a commode. I am not able to get out of my bed on my own. I have to ask for every little thing I need and am so grateful I am attended to by someone who calls me by name and isn’t rushing anywhere. After a day of misery adjusting to the sudden loss of all independence and unabated pain as the steroids wore off, I woke up this morning with a steroid afterglow.  This time I called on my nurses to do my morning ablutions as I will not misread the temporary relief of strength to attempt standing on my own until my legs can obey a standing order again.

Last night the head nurse came in and said a new MRI report indicated a possible small fracture in my sacrum was found. I can tell you that from my own Goddess-like senses, that yes, I knew I have a fracture or otherwise I would not have lost the capacity of bearing weight in my legs. And the acute sharp pain? That is a new pain for me, and a fracture is the only thing that makes sense. There is no other treatment except for time to heal it and as sitting and standing depends on a sacrum, I won’t be doing more than short supervised experiments of those actions as bone and muscles heal of their own accord. Isn’t that amazing? The body wants to heal and it shall.

And to end with a small miracle, my older daughter came for a visit outside the ambulance entrance here today with my 6-month-old grandson. He can’t come inside as he cannot wear a facemask. I transferred to a wheelchair with only slight pain in my left knee which had gotten torqued from my second fall. I sat for a full 15 minutes of non-stop talking with my daughter and singing baby songs to his smiling face with two brand new teeth to show me in return.

Slowly but surely my recovery is in sight. And my 2-and-1/2-year-old grandson who was napping at home thought I needed a piece of cheesecake that he told me on the phone that he had liked “very much, very much”. My daughter also brought me a scarf my older grandson had picked out from Spain where they had visited last month. The final healing food was two chocolate chip cookies that I had seen him make last night on FaceTime with his mother. Watching him contain himself from eating chips out of the dough was a hoot. I now will check to see if my cookies still contain any chips. Little rascal.

I am glad to be back in the SCC in room 602.

Personal Signs of Spring

Diary 2/18/19

The Ides of March are upon us (‘ides’ being a Roman method of naming the lunar cycle in March; Shakespeare named the dangerous time frame for Julius Caesar’s death, not for the rest of us) and it is good to know that spring is inching closer every day. Despite the gathering snowflakes on the lawn this morning, my ‘dirt’ fingers are itching. I can’t get out there to work the earth or plan landscaping for outside of my windows yet, but I am mentally puttering inside with potting the six plants now under my care. That is the #1 sign of my internal spring returning.

When I first arrived at Kendal I was adamant- No Plants. In my widow shock, the concept of caring even for a plant was beyond me. I had nothing to give. I barely kept a beautiful orchid alive that my in-laws sent me as a welcome gift. Likewise, I was relieved to be cooked for at every meal no matter what was served. It turns out my body is still sensitive to even incidental gluten and processed grains on a daily basis and I really do not like beef or pork. I am so glad I now have a kitchenette.

My personal spring #2 sign, is that I am cooking for myself more often to supplement the meal choices on offer. Kendal has a 7 week rotation menu schedule, changed for every season. I now know that ‘Caribbean Chicken’ tastes less appealing than it sounds. By my standards, the vegetables are mostly overcooked, there is little salt, and even less seasoning in most dishes. There are some exceptional meals, and there are unannounced surprises like excellent seafood gumbo for Mardi Gras. The variability and limitations of what I both like and can safely consume, are uncertain week to week.

Learning to use my microwave in unique ways- gluten free ‘banana bread-in-a-mug’ on Sunday mornings, Yum!- and ordering a small InstantPot will give me a much larger scope to stretch my wings. I am so grateful to cook again.

Speaking of wings, the #3 sign of my burgeoning growth is: I am going to choreograph a dance for Kendal’s next big community wide event. Spring Fling is about dances and the theme this year is butterflies. My senior dance major friend from Oberlin is returning the favor of being in my five minute piece as I was in hers for her senior project last semester. To begin our piece, another friend will read: “This is from The Butterfly as Companion: Meditations on the First Three Chapters of the Chuang-Tzuby Zhuangzi or Chuang-Tzu, a great Chinese philosopher who died in 327 BCE. He was a major contributor to the philosophy of Taoism and had great influence on the rise of Buddhism.”

Once upon a time, I dreamt I was a butterfly, fluttering hither and thither, to all intents and purposes a butterfly. I was conscious only of my happiness as a butterfly, unaware that I was myself. Soon I awaked, and there I was, veritably myself again. Now I do not know whether I was then a man dreaming I was a butterfly, or whether I am now a butterfly, dreaming I am a {wo}man.”

My friend, Martha, and I have many non-corny ideas to set this into literal motion using five minutes of Samuel Barber’s Adagio for Strings as our musical backdrop. She is also a meditator and this is a classic parable on the nature of reality. People will hear what they hear, and see what they see, but for us, it is a deeper revelation we are exploring. I just found out today that we can have it filmed by a professional photographer who is married to a social worker here. Kendal has a newly installed large screen to view it in the auditorium. Rather than doing a live performance, this video will provide for a more relaxed creation in case the actual night is a ‘bad body day’ for me. If it turns out well, I will learn how to post it on this site. My body is still sore, limited, and shaky, but I am filled with visions that cry out to me, “Come, move as you can.” Together, Martha and I will, and will not be, flying.

May we each find our personal signs of new growth in the midst of the world tragedies and sorrows that we all bear. May our tears water that which is starved for the waters of Love.

Story Pie

Diary 3/7/19

The sweetly dreaded question, “How are you?” comes round many times a day. It is both a social exchange and true curiosity. It is also an implied declarative statement of, “ I see you are up and around after major surgery, you look great, and now what? ” The dilemma is how to answer it without an inner snarl because there are a lot of people to pass in the halls everyday. The question arises from nurses, aids, fellow residents, friends and strangers to me (but who somehow seem to know my name even if I’m not wearing my name tag).

Each one requires a different answer depending on their role in my life. It is also a stumper because everyday so far has been very different from the last. One day I walked 300 feet to and then back again from a farther dining area. The next day, walking that far wasn’t possible but I sat up for an hour, four different times that day without too much pain. I am definitely standing taller as I use my rollater. My neck realignment requires a new, improved posture to keep the sharp animal claws from sinking into my shoulders when I slump forward, as opposed to the dull ache of the creatures just hanging there when I am upright. When I take a step, I can ask my left heel to hit the floor first, avoiding the former foot drop issue I had on my left foot. I wore an foot/ankle/orthotic (FAO) brace for many years to prevent falls when my left toes refused to lift and were tripping me up. Now my PTs suggest not using it unless I am walking long distances. Rather than the brace holding my foot flat for safety, I need to work those small muscles to flex and extend again on their own.

The source of my ongoing back pain is also more clear to me. Now that I can feel how atrophied my muscles are in my trunk, back and butt, it is evident how much my inability to hold myself up is the cause of that pain. Because it will take a long time to build up muscles again, it will be a while before the ‘sitting up” pain issue is resolved. It is not a separate category of pain. It was neither caused nor immediately cured by the surgery. Rather the surgery offers me a welcome pathway to relief over time.

“How am I?” is a very loaded question to answer. Mostly a cheery, “Hanging in there,” or “Pretty good, and you?” is sufficient. I can also say, “I am fine, but my body is going to take at least a year to heal.” That is the truth and backs off the eagerness people have to hear the happy ending of my story. The ending is a lot of ongoing hard work, and it is the best job I could have. People love drama- either the sadness on learning of a recent death of a fellow resident, or the happy ending to a recovery story. Everyone is entitled to their share of the story pie. In a community, we belong to one another no matter how close our social interaction level. Your story is my story, too. And yet, we are all plagued by our own politeness. My friend down the hall who just lost his wife of 63 years, says the question drives him crazy. I know that I am not the only one.

For the limerick assignment in our poetry class last fall, I wrote this one as part of a series:

“How are you doing today?”

I’m bamboozled to know what to say.

I say that,” I’m fine.”

Such a meaningless line,

We’re relieved just to be on our way.

A little snarky, but it rings a bell for many of us who live within the Care Center of Kendal; we who are here because we have designated compromises and do not live independently in an apartment or cottage. It is hard to treat the phrase as a simple greeting. How about, “Good to see you,”? “Good to see you, too,” is a lovely response. Of course you can ask me how I am… if you really want to know.

Headlines: Woman Counts Butterfly Reps

Diary 2/25/19

Today is the day that my PT and OT sessions got really interesting. In both of them, I was assigned sets of exercises to do on my own time. This is challenging and I look forward to accomplishing the tasks. I have never been a repetition oriented exerciser. I usually find it a bit boring and a little mind-numbing. I do not, as people often do, choose to watch TV at the same time I am exercising. If I bring my full attention to anything I undertake, I find it more fulfilling. Pleasure for me is focusing on each action, and then I am less prone to wondering at count ten, what the lunch menu will be. But counting how many lifts you are doing can also mark your usual fade out time and give you the structure to do just One more. OK. Two more. Yay! Three more than yesterday! There are times when only dynamic, linear repetition can bring you strength and build endurance; or, recreate functional, efficient mobility as I did the first time around when I was a baby and toddler.

Right now, I am engrossed to see how much any given movement engages with new information everywhere else in the long neglected muscles of my body. Neglect was born from having a failing neurology to get information to them (efferent connections) and to the pathways returning (afferent) feedback to the brain. My muscular control has slowly faded into the background altogether. Most of my muscle groups haven’t automatically worked on their own since my early days of MS, some forty years ago. I could still command them by thinking of them in my mind for maybe half that time. And then the commands stopped being issued because I got fewer and fewer responses. The phone kept ringing but no body was picking up.

The thrill of feeling how hard my core muscles work to lift a 2 pound weight across my chest and back to the side was a headline above the fold. I know how atrophied my back and leg muscles have become. It is likely that my left side may always be weaker than my right because of past MS lesions. But it was wonderful to feel that the pulling sensation while working my arms wasn’t restricted only to my arms and shoulders. My whole body was working hard. When you lift a limb out and away to the right side, your left side automatically works to stabilize you so you stay upright in gravity. This is basic kinesiology 101. I am learning it not from a textbook, but from within my own body.

My butt and lumbar muscles were exhausted long before my weighty butterfly arm stopped flapping. As they should be. That they work at all, to know that they are very much still tied into the whole of me, makes me teary. Though Matt and I were joking around, he knows how much it means, and with a smile, predicts I will be very sore tomorrow. Cracking through my cement bound shoulder pain is not as much fun, but healthy soreness from correctly directed exertion is an article I am happy to write. Each count of a rep brings me closer to my goals of reconnecting nerves to muscles.

Matt also took me back to my room- and I walked all the way there and back with my rollater, maybe one hundred and fifty feet, each way, with my left heel striking the ground with each step. I wasn’t using my arms to hold me up. I wasn’t dragging myself along. I was standing up straight. He said that on Wednesday we will shift into part B of my rehab, which is to help me get out of skilled nursing and back into my room. He will make sure I can take a shower, open and close my closets and drawers, and reach things around my kitchenette safely. He will see how well my beautiful reading chairs will work for me in terms of sitting and rising and if my bed is at the appropriate height. In short, he will make sure my sunshine room is properly equipped for this next phase of spreading my wings. I will keep you posted in the next edition of Rep Woman, hot off the press. If I am not too sore to type.